September 28, 2007

Sophie Lu Gets Glasses!!!

After waiting almost 3 weeks to get her glasses, a very excited Sophie Lu became a little apprehensive just before she received them...

But then they handed her a silky pink "glasses purse"...

and a mirror...

and Sophie loved her glasses at first sight!


Of course we think she looks just beautiful too!


The doctor administered an informal test to see what she could "see" (she did great)!


Sophie & Daddy in their glasses together!


Sophie amazes me- she is so resilient and strong and so very brave. We are SO proud of her!


So here she is... our beautiful Sophie Lu in her glasses!!! I think the photos (especially the one of her smiling at herself in the mirror) speak for themselves... but here is the video of her first moments in her glasses & part of our car ride home!


Glasses still not in!!!

I can't believe it, but Sophie Lu's glasses are still not in! It's so frustrating... I guess her prescription is a very unique and difficult one to fill, but still...

Hopefully they will be coming in today because Sophie is starting preschool on Tuesday! She'll be going for just two mornings, and she is very very excited! So hopefully I'll be posting about her glasses and her 1st day at school very soon. Thanks to everyone for you concern and best wishes!

September 18, 2007

Sailor Girl Sophie Lu ( Glasses not in yet)
































September 14, 2007

Thank you...

Once again, I am humbled and so comforted by the outpouring of support, compassion, wisdom, prayer, and advice... thank you so much with all my heart. I am feeling much better and very encouraged! I am going to ask Sophie's doctor about vision therapy, behavioral optometry, permeable lenses, and everything else all the gracious commenters/friends suggested.

I also want to express my gratitude and appreciation for all the personal stories everyone shared- it really does help to hear others' stories of strength and success. I don't feel so alone in this now, and I am even more grateful for what we have been blessed with...

Hopefully, Sophie's glasses will come in today (they put a rush on them). I am going to try to video record her first moments in them- but there will definitely be photos! She is VERY excited to get glasses- we've been working on that for a while now. :)

And thank you especially to Jaren who reminded me of the quote I posted back in March, 2005...

The most beautiful things in the world
cannot be seen, nor touched...
But they are felt in the heart.

-Helen Keller (who has been on my mind so much this week)

xoxo, Shana

September 12, 2007

Upsetting news (Sophie's vision)

For many reasons, we've always suspected that Sophie Lu would need glasses, so our pediatrician referred us to a wonderful pediatric opthamologist whom I took Sophie to on Monday. We spent nearly five hours at her office... Sophie had to have eye drops to dilate her eyes (that part was traumatic), and then she courageously endured an endless series of tests. I was so proud of her, and she was SO sweet and polite (she said "Thank you" after each test). Even the doctor was impressed with her maturity and cooperation during the long appointment.

Unfortunately, the results of the tests (which she verified and re-verified) were much worse than we had hoped for. The doctor explained to us that Sophie Lu has very very poor vision- actually, she is legally blind... Her vision is 20/200 in one eye and 20/400 in the other. She is severely near-sighted and has astigmatisms in both eyes also, but more troubling is that there is an unusually large difference between the prescription required for her eyes. The doctor explained that usually there should only be a 2.0 point maximum between the prescriptions, but that Sophie's is much much larger than that. She is hoping that corrective lenses will help Sophie's vision, but she is unsure because the brain may have already told at least one of her eyes to shut off or not try to see... She mentioned double vision, extreme blurriness, and some other things- but I probably forgot them because I was so upset by this point. The doctor told us that the optometrist wouldn't even believe the prescription. After the doctor told me how strong Sophie's prescription would be and how thick her lenses would be, I asked her if Sophie would get headaches from the glasses... She answered, "She's surely having headaches now... it's amazing that she even gets around as well as she does... she is tough." Of course I knew that- she IS tough... she is so tough. It just breaks my heart to think of how she sees- or doesn't see the world around her right now... everything so blurry unless it's within a couple inches of her face- it's no wonder she holds everything so close to her eyes and doesn't much like to color or draw... I feel guilty for not taking her sooner- but I honestly thought 3 was early... and at the same time, I'm so glad that I did take her this soon. I'm so so worried- worried the glasses won't help... worried her vision will continue to decline... just worried and so sad. Like any parent, I want the best for my baby girl and I want her to have the world- to see the world- and to experience everything life has to offer (and more). This has me very emotional, and it's on my mind constantly... and then I start to feel really guilty because there are moms and children who have it far far worse (and then I start to feel thankful too)... and I start thinking of the children that are totally blind and in complete darkness... I know I am rambling, but this is where my thoughts go as I try to come to terms with all of this. And perhaps it's also frustrating to me because it's beyond my control and there is nothing I can do to change it...

What I can do is pray for Sophie's continued strength and resilience. And I can be thankful that things aren't worse (because I know they could be by far). And I can appreciate that even though my daughter can't see very well, she does see the beauty in her world... she looks for the moon every night and notices the flowers wherever we go... and she sees things as we all should see things- through her precious, innocent eyes- she sees the good. May she always always see the good...

I'll post photos of my beauty in her pink framed glasses the minute she gets them.
`

September 11, 2007

Sophie Lu & her Pink Inner Tube










Sophie Lu loved floating around in her inner tube (led by Grandma)... but the ocean sure wore her out- she slept really well that night! :)

September 06, 2007

She calls herself "Movie Star Fi"!





It's true- she puts on her shades and calls herself, "Movie Star Fi" (we sometimes call her Fifi Lu)... Oh, and I do believe she thinks she owns the beach! ;)

September 04, 2007

Sister Becca & Cousin Brittany join us in Florida

Cousin Brittany & Big Sister Becca joined us for 2 weeks in Florida! They are wonderful girls, and we enjoyed every minute with them! Sophie & Ollie were particularly happy to have their special playmates around!


Becca (my youngest step-daughter) turned 16 while we were there! From left to right: G-Pa Jeff, Grandma Rae, Becca, Brittany, Uncle Bryce, Sophie Lu, Mommy & Daddy




Of course, Sophie Lu helped her big sis blow out the candles on her birthday cake! They are so cute together- I'm thankful for the special time we shared with both girls!